At Suburban Turban we‘ve been designing hats for women coping with chemo hair loss for over 11 years. Our studio started small back in 2006, (my spare room!) I’d been an ‘Ascot’ milliner for 10 years and had never considered designing hats for women at time when they had a real need for elegance and soft headwear. I responded to a friend’s request, a surgeon at Royal Surrey Hospital, to organise a GRACE (http://www.grace-charity.org.uk/) fashion show fundraiser and the rest as they say is history.
We’re now a team of 5 milliners, designing and producing 2 collections a year. The studio moved to just outside Guildford, in Surrey. Here we can create hats right from processing and pre-shrinking fabrics, all the way through to trimming and finishing. As a small artisan company I love the fact that we’re able to bring uniqueness to our designs, selecting beautiful fabrics and hand-finishing trim details. Suburban Turban has become known over the years for our dressy daywear and eveningwear styles, many of which incorporate draping fabric to create shape and volume. We also love developing head wear solutions for specific needs – the non-slip exercise hat (https://www.suburbanturban.com/rachel-sports-chemo-hat.html ) and the realistic hair fringe wig (https://www.suburbanturban.com/hair-fringe-wig-for-hair-loss.html) were created from clients’ requests. If you’re facing chemo hair loss, or know of someone who is about to start chemo treatment, here are a few milliner’s tips to help make the transition with minimal stress.
We regularly hear ‘I don’t like hats. I have no idea how to wear a hat, or what suits me?’ Many of us only wear a hat for practical reasons – warmth in the winter, or shade in the summer. Not enough of us regularly wear a ‘Trilby’ because it’s part of our ‘style look, or a cocktail hat because we want to make an entrance when we walk into a room! Hats for hair loss will need to be worn for much longer periods of time – both indoors and outdoors.
Tip no. 1 – Lightweight fabrics in soft hat styles help make that indoor/outdoor transition easy and avoid overheating. Think trying to wear your bobble hat or ski hat indoors whilst meeting the girls for a coffee – it would look suitably casual, but it would be rather warm to wear indoors. Feel the hat and remember fabrics that feel soft and lightweight in your hand will feel the same on your head. Try to avoid scratchier wool mixes, synthetic fleece materials and linings, felted wool on a sensitive scalp needs a liner, (more of this later).
What’s your style tribe? Are you a casual dresser – a busy stay at home mum with children; an office worker requiring a smarter approach; or somewhere in-between the 2?
Tip no. 2 – Look at hat styles that will easily fit with what you currently have in your wardrobe – caps for casual days – school pick-up, dog walks and supermarket trips. Beanies and turbans for casual to smart or indeed smart office days. Think about colour too – this will make the everyday ‘getting ready to go’ quicker and less stressy. You’ll feel much more confident and in your ‘comfort zone’, if the style and colour feel right.
If I buy one black chemo hat that will work with everything – right? It is understandable to think that black goes with everything, but treatment can change your skin tone. You can look paler and more tired – black only tends to accentuate these characteristics.
Tip no. 3 – Think about deep jewel colours for your hats – they add colour to your skin tone and even on a ‘tired’ day help you to look well. You are going to need more than 1 hat over what could be a 6 month period of hair loss. They won’t get particularly dirty – they may collect a little make-up / perspiration but they will need a freshen up and a re-shape. If at all possible buy 2-3 and ring the changes – your hats will last longer with a rest.
So all hats are the same I just need to pick one up and I’m good to go. Another key difference with hats for hair loss wear is that they need to be cut and made deeper at the back of the head. Sounds obvious I know (!) I know but not all hats cover the back of your head. Winter knit hats will but you may not wish to wear wool knit (or synthetic knit) next to a bare scalp and they’ll be too warm.
Tip no.4 – Look at fuller styles like Baker Boy cap, bucket hats, beanies in lighter fabrics, berets – any style that is made fuller so that when you pull it down on to your head it doesn’t ruin the overall shape of the hat and you get enough coverage. Cloches are another good style that sit deep on the head.
Many women (not all) tell us that at the point of total hair loss (sometime around chemo treatment no. 2) the hair follicle is super sensitive and a wig/ headwear can be a real struggle. This seems to last for a week or so and then settle down. We would strongly recommend you plan ahead and have a soft beanie ready for this time. This way you have something to put on and you can wait till this phase passes. You can of course plan ahead – cut your hair shorter, purchase your wig whilst your own hair colour is there for reference, purchase hats for those times you don’t wish to wear a wig. This is all very much down to personal preference and how you wish to manage your hair loss.
We’re here on the end of the phone if you need style help and advice, or indeed if you’re local enough to come and try them on at the studio. Hair loss is one of the hardest knocks of cancer treatment, but there are now plenty of solutions available – realistic textured wigs and stylish headwear. You can take control of your hair loss, reclaim your confidence and feel gorgeous again.
Breast cancer changed my life in the most positive way!
I was diagnosed aged 35 with no family history of cancer of any kind. It was an instant steep learning curve but one I embraced from the start. I had always been very sporty, ate well and lived very healthy or so I thought at the time. I had always been into health and healing through non conventional ways so it was a hard decision deciding to do Chemo, getting my eggs frozen and doing Radiotherapy. I decision I would no longer personally have taken.
The doctors told me I had no time to decide and I must start treatment instantly. I now regret putting my body through the overdose of toxic chemicals as I believe like a growing number of other people that I could have healed through non conventional western ways. But in going through chemotherapy etc I can now relate to others that go through the same and help educate them in my mission that is dedicated to NonToxic Practice(TM) and prevention of Cancer.
Five years on I run Hello Love. The Home, Studio and Dojo at 62-64 Southampton Row in Holborn London. I set up with Kevin, my Cancer Wingman and partner in crime. It is also the spiritual home of my breast cancer charity the Hello Beautiful Foundation.
Prevention is key! Prevention of a re-occurrence is also so important. At Hello Love the basis of this practice takes place on 3 levels:
Mindfulness and positive emotional awareness as a means to living freely without stress and anxiety.
Organic plant-based diets that are free from animal proteins, processed sugars and genetic modifications. This extends into natural cosmetics
and finding products that have not been laced with parabens, pesticides and other chemical compounds.
Qi Gong, Sound Massage, Meditation and other holistic forms to realign the spiritual center and unify our purpose.
Over the last 5 years I followed this practice and dramatically changed my lifestyle. Its not a quick win it takes time, dedication and commitment but the rewards are immense. The way my body feels and the energy I now have is greater than I have ever experienced.
I started by throwing away all of my cosmetics. I had hundreds of pounds worth of everyday brands like Clinique and Mac make up. So many cosmetics from shampoo, toothpaste, hair dyes and nail vanish contain harmful chemicals including Parabens, Sodium Laureth Sulphate and many harmful detergents. Sadly my hospital prescribed a lot of these to me during Radiotherapy. Instead of helping to release the radiation they suggested rubbing my breasts in Petrolatum laced cream that would not allow my skin to breathe. Luckily my constant research helped me to be knowledgeable not to use what they were prescribing. I’m now starting to make my own cosmetics as nothing is as pure and healthy than knowing 100% what is going into what you use. We even use NonToxic paint at Hello Love so we are not breathing in so many chemicals on a day to day basic.
My food regime has changed gradually over the last 5 years. 3 years ago I would say I was eating super healthy and I am sure in another 3 I will think what I am eating right now isn’t that great. It’s about constant learning and growing and not stressing over anything! If one day you are dying for a cake then have it.
I only buy organic food. I make my own organic muesli on a morning and add some berries. I cut out diary due to the estrogen levels in animal products and I make my own nut milks. Bought nut milks often contain cancer causing emulsifiers and everything you make yourself is better than buying as you know 100% what is going into it. I eat a plant based diet. My plate is always full of colour. There is so much choice, variety and my taste buds are so intense after getting rid of processed foods, preservatives, sugar and meat from my diet. I also love juicing. We have an organic juice bar, tea house and vegan cafe at Hello Love and follow Gerson therapy of cold pressed juices which are full of nutrients and healing qualities.
Finally I focus on my soul. These days I work more than ever but I make sure im never stressed about it. If the train is jammed full I will wait and get on the next one or wait for the next 6 to come before I stress to squeeze on. In other words I go around as stress free as possible.
Being in the moment is key. Not worrying about the past or the future but only concentrating on the exact moment you are in. At Hello Love we offer a range of holistic practices that I practice myself. Meditation, Qi Gong, Sound massage, Gong Baths, Reflexology, Aromatherapy, yoga etc. The more I practice the more I lead a healthy lifestyle to help not only prevent a re-occurrence but help prevent so many illnesses.
I can now say I love every minute of life, the good and the bad and I love all I am learning from my cancer experience.
My name is Lorraine Lewis and together with my husband Lee Lewis, we run a charity based in Northampton called The Lewis Foundation.
Every Friday we hand out free gift bags to adults with cancer in Northampton General Hospital. The gift bags go to day patients and overnight stay patients. The patients can choose from a choice of 12 gift bags, which ranges from portable radios, magazines, craft packs and pamper packs. The aim is to take their mind off thinking about cancer and give them something nice to look forward to. It is also to reduce social isolation by spending time talking with the patient once they have received the gift bag.
We spent a lot of time on Talbot Butler Ward when my mother in law was receiving treatment for non – hodgkins lymphoma cancer. We noticed what a lonely place a hospital ward could be. We first started off helping by fundraising to buy TV and DVD players for the private rooms on the ward. It really bugged us that people had to pay £10 per day or £35 a week to watch TV. We used to smuggle in a TV because it was something that we just couldn’t afford.
So, I decided to spend 2 years fundraising to pay for 14 TV and DVD players. I did Tough Mudder and Rat Race Dirty Weekend in 2014 and 2015. They were one of the biggest challenges I have ever done, but to get me through I reminded myself about what I needed to achieve. I raised enough to purchase 14 TV and DVD players, which are still being used today. Nothing makes me happier when I see people watching them with the other TV’s pushed to the side.
However, we both thought we needed to do something on a long term basis and more personalised. This is how we noticed how difficult it was for people financially, physically and emotionally and we wanted to do something about it. Whilst in the hospital we heard things people needed such as a crossword book, some toiletries or something to read. We know how these items now become luxury items because you can no longer afford to work to pay for them. That is why we introduced the gift bags.
Since we started in April 2016, we have given out over 1500 gift bags to people within Northamptonshire.
Below are all five individual vlogs breaking down the letters S, P, A, C and E and exploring what they stand for within the community of cancer survivors and patients trying to nurture themselves and move forward after a diagnosis.
I can’t say I am all that sure about sitting in front of my phone and videoing myself! Who is? But, I wanted to do a series of vlogs, face to face, explaining what SPACE means to me and why it has been such an important concept for me during cancer treatment and survivorship and the background to why I set up Samspaces and A Daily Space.
Talking to anyone affected by cancer is a personal and sometimes uncomfortable experience but it is something I feel passionately about. I want this community to know who I am, what I have been through and why I am doing what I am doing.
Check out the overview of the five vlogs I published on my You Tube channel in May 2017 where I discuss the analogy of the word and look at what each letter means to me.
“I’m sorry to say Mr Blair, but you have a brain tumour. It’s the size of a large egg, and we are going to aim to operate, perhaps some radiotherapy, chemotherapy, but if theres nothing else we can do, we will just keep you comfortable.”
As my husband was given those words I felt myself sinking into the floor. The world seemed to go slowly as I looked up at his Mum, perhaps expecting to catch her, but she just looked white. I looked to Ross, he seemed shocked, but calm.
That’s Ross though and there really wasn’t anything more to say.
That was the beginning.
He had been having headaches for a few weeks, had been going through depression and mood swings, but we had a new baby and we put it down to that.
Ross’ Mum, Dionne and I drove home without him and the car was eerily silent. No words could express what we were feeling.
Pure shock and fear. Deep, deep fear.
Getting back to my house we were met with Matty, Ross’s younger brother (who had been babysitting my two girls, while we had gone into hospital) he asked if everything was OK and his Mum told him the news. We just hugged and cried. Terrified.
Matty and Dionne left to go and see his sister and for a short time I was alone.
I phoned my parents and sister and delivering the news to others made me sob. What was happening? He had gone in with headaches!
The truth is, I new it was going to be bad, I never for one second thought it would be this, but I knew something was going on, something bigger.
I phoned my agent and left her a voice message. As a TV actress I had just finished filming BBC Casualty and had booked a film. I wanted to let her know that couldn’t happen, I just wanted to tie up loose ends, be present in what was happening.
I looked around at my house and I wondered what it all meant.
What would happen with us? The girls? How would I cope with this?
Nothing seemed to make sense and there was no answers.
I am an extremely positive person and I just knew I had to focus on one foot in front of the other, one step at a time. Clear everything, seek help from those around us and be there for Ross emotionally.
We have an extremely good bunch of people around us and over the coming weeks (with Ross’ instruction) a schedule was put together and everyone took turns having the girls. We wanted to make sure they didn’t get embroiled in any of it.
Brooke was about 3 years and Texas 1, so they couldn’t really understand, but I knew they would sense something if they were around us.
Everyone chipped in, they took so much pressure off us and those that did that will always have a place in my heart. The girls nursery, lead by the owner Steph, took the girls for months, free of charge. That is the good in the world, that is humanity.
Someone from America contacted me in the early days and we spoke online. This lady had grade 3 brain cancer and she was very pragmatic about it all. She gave me the advice “This can still be your life, it will be brain cancer life now, but it doesn’t have to define you”
This stuck with me and as an advanced practitioner of The Law of Attraction and someone who knows that what you focus your mind on, you bring into your reality, I practiced what I preached.
When people tried to tell me how horrendous chemo was going to be for Ross, I said “He will be fine, we will focus on that when it’s here”
People mean well, but they often impart their own fears onto you and that just wasn’t how this was going to run. Some may see that as naive, but you’re wrong. Ross hasn’t read a single thing online, or otherwise into brain cancer, chemo, radiotherapy, brain surgery and because of this he doesn’t know what he is supposed to feel, he just feels it if it’s there.
He has been remarkable. Two brains surgeries, chemo, radio, seizures, doctors poking and prodding, having his driving licence taken off him. He has defied what people said.
He has left intense chemotherapy to go and play football, or ride his bike. He would go into chemo and say, “shall I breeze this one?” and I would, of course, tell him “yeah, do it! Why not?”
You will never hear Ross say “This is a nightmare” or “why me?”
Quite the opposite, you will hear him say “Why not me? None of us are immune, it’s just science” or “I’m bored if it now, it’s gone anyway” “They keep telling me I’ve got cancer, but I can’t feel it!”
He is never a victim, WE are not victims.
As the partner of someone going through stuff it can sometimes feel like you are watching a movie you cannot do anything about. You feel frustrated for them, want to take away any pain, but yet you are left to watch. I had to learn to let go of trying to control Ross. I wanted to tell him what to eat, what he could and couldn’t do.
I was scared, there is so much information out there (often conflicting) and I just wanted him to be OK. You have to let your loved one make decisions or you will find your relationship will shift.
It does shift naturally anyway, as the partner, or carer you take on roles you didn’t have before. Believe me, I was not chief driver in our house and I don’t relish in it now. At the beginning everything was down to me and although we have tremendous support, it felt alien.
Nearly 3 years into his diagnosis and he is currently having chemo again, you wouldn’t know there was anything going on in his body. It’s hard to imagine what we have been told is reality, so we live like it’s not.
It’s not our reality right now and we live with hope. We are very realistic people, we know its not an easy one, but we try to live in an authentic way and mix practical (doing a will and power of attorney etc) with living our normal life and hoping for the best.
It’s the letting go and the fear that stops most, but the reality is that MANY people LIVE with cancer. It isn’t free of cancer, or death. It’s upkeep, its appointments, but in-between you live.
The advice I could give to others going through this is to block out negativity, focus on your loved ones and being as normal as possible, don’t try and force new ideas onto them and find time for you.
You are useless if you go down. You have to have time out and it’s a good idea to let people know you don’t want to talk about cancer all of the time (or people REALLY will)
Remember cancer isn’t personal, it doesn’t ‘only happen to the good ones’, you don’t have to be defined by this, in fact there can be positives to come out of it.
Strengthening your bond with your loved one
Seeing the wonderful side of humanity in the nurses, doctors and others around you that offer help.
The strength that you can find within you will stay with you forever. You learn compassion and empathy for others and a deeper understanding of whats important.
I had no experience of cancer before Ross and no real understanding of the impact it has, now I know that people’s lives get shook up and rung out and I want to help.
My approach isn’t for everyone though, I’m pretty straight talking, no bullshit and will not have negative chitter chatter. Say to yourself everyday “I will work this out” and get on with you day.
I have been thoroughly changed by Ross’s cancer diagnosis and I am not the person I was 3 years ago. I have seen and learnt things that will stay with me now forever and I am very strong.
As a carer, or someone close to someone with cancer, I am on your side, I am holding your hand, I alright there with you, I know, I KNOW and you are not alone.
Sending strength and love to all.
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